A slight change in plans

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For those of you who have inquired and are praying, here’s an update.

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I was able to get my thyroid biopsy moved to Duke on Monday, September 25, the same day I will have my first post-op labs and my 2nd post-op appointment.

Labs are at 8 a.m. I’ll see Dr. Rossi at 9 a.m. And then I will have the thyroid biopsy at 1 p.m.

That’s a quite a bit for a single day, but it definitely beats driving back and forth to Durham a second time, and it also assures all of my care will be at Duke and nothing can be lost between practitioners.

Thank you for caring and praying!

Good reminders and a beautiful sunrise

Walking the beach, listening to Craig Groeschel share the Word this morning.

A few gems:

• The providence of God is best viewed backwards.

• I want to remind you of the goodness of the God Who is able and Whose plan is always better.

• So if you're stuck in the in-between, stay faithful to God.

• While you are waiting, God is still working.

Groeschel referenced this passage of Scripture, a favorite of mine:

Now to Him who is able to do immeasurably more than all we ask or imagine, according to His power that is at work within us, to Him be the glory in the church and in Christ Jesus throughout all generations, forever and ever. Amen.

Ephesians 3:20-21

You can listen to the whole sermon by clicking on the link below... or listen wherever you listen to podcasts.

It’s a delicate balance

When I was first diagnosed with Granulosa Cell Tumor in 2019, I did a fair amount of research on the subject, but I did not seek out community with others with the same condition.

However, when I was diagnosed with a recurrence in February of 2023, I immediately began searching out a support system, wanting to gather all the information I could before moving forward in making crucial decisions. I found a group of women on Facebook who have been a great support system, a wealth of information.

On the one hand, I am so thankful to hear the stories of others, to read about their experiences, to understand how they came to the decisions they have about their own care.

On the other hand, some days it gets to be a little heavy, hearing how difficult things are for some of my GCT sisters, wondering if my life will be like that in the days ahead.

It’s in those moments, when my mind goes to the “what ifs” I know I need to step back, to stop reading, to give myself room to breathe and remember every person’s story is unique. Though each of us is living with GCT, we’re each on our own unique path.

There's a delicate balance between being informed and being discouraged.

A different level of care

From scheduling to reception to nursing staff to physicians, the patient care I have received at Duke is far beyond anything I’ve experienced anywhere else.

I had my first appointment with endocrinology yesterday, and I was reminded again of all of the reasons I am thankful I transferred my care to Duke. I am exceedingly grateful for good insurance that allows me options and choices.

Our health care system as a whole is broken, but I can say without reservation that kindness, compassion, and professionalism characterize standard of care at Duke and make the long drives to and from appointments worth every mile.

Because I decided in March I was going to share this journey…

Here we go. I’ve gone back and forth about whether I was going to share this, but I’m going to put it out there . . . even if it turns out to be nothing . . . because it’s part of the journey.

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Back in February when my recurrence was diagnosed, a thyroid nodule was noted on the CT scan. In all that transpired after that before finally having surgery in May, that little "concern" was put on the back burner.

Recently I realized, "Hey! That was never addressed. And hey! You've got to watch out for yourself because no one else is doing that for you."

So . . . a few weeks ago, I saw my PCP. He looked at the scan and suggested I see an ENT for an ultrasound of my thyroid. I finally had that appointment today.

Though I have a number of nodules (which is common), there is one large one which is solid with substantial intranodular blood flow that is "concerning." Therefore, I will have a needle biopsy on September 26.

The ENT was incredibly kind, and he wanted to make sure "this won't push you over the edge." He reminded me not to be worried until we have cause to be worried. So that’s what I am going with.

There’s nothing to worry about until there is something to worry about.

Kijan sante w ye?

I have just returned from Haiti, and over and over I was asked this question, “Kijan sante w ye?” (“How is your health?”)

And each time I answered, “For today, I am well. I can not speak of tomorrow or next year, but, for today, I feel I am well. Although I was told the medication I take would cause many problems, for now, I do not have them, by God’s grace.”

Can any of us really ask for anything more than to know that, for today, all is well?

Functional Medicine

According to The Institute for Functional Medicine,

Functional medicine is a systems biology–based approach that focuses on identifying and addressing the root cause of disease. Each symptom or differential diagnosis may be one of many contributing to an individual’s illness.

For example:

One of the physicians who treated me this spring and affirmed my going on Letrozole also urged me to look into functional medicine to broaden my perspective on health and healing. Therefore, I have established care with a local practitioner.

Thus far, I have had one virtual appointment, one in-person appointment, blood draws that yielded 6 pages of results, and a recommendation to begin taking a number of supplements.

And honestly, at this point, I am not sure what my opinion is on it all.

My blood work was largely “unimpressive.” No one thing jumps out as being problematic. In fact, of the 84 results given, only 4 were outside of the reference interval -and only marginally so, at that.

The practitioner recommended adding some supplements to those I was already taking, so now my daily intake includes vitamins C, A, and a B complex, magnesium, melatonin, turmeric, and collagen with biotin, plus a-Drenal.

The bottom line is this. I do not expect my functional care practitioner to have the panacea, but at this point I feel like what she’s recommending can’t hurt, so I am willing to combine her recommendations with traditional treatment and a healthy lifestyle that includes physical activity and conscious eating.

The Fueled by Faith Podcast

I recently had the opportunity to talk to my friend, Emily, on her podcast - Fueled by Faith. Though the conversation was not what we had planned, we believe it is exactly what God intended for us both on a morning when we were both clinging to the promise of Psalm 73:26:

My flesh and my heart may fail, but God is the strength of my heart, and my portion forever.