A brief update - Oct 11
I will see the goodness of the Lord.
As many of you know, I had labs, a PET CT scan, an appointment with a nutritionist, and my pre-op visit yesterday. I will have more to share next week, but as a number of you have reached out by text to check on me, it’s easier to just share a brief update now and fill in details later. The PET scan information has not been published to MyChart, though I have seen it and discussed it with my health care team at Duke.
The basics:
The scan showed interval increased size of the previously seen nodules, as well as new hypermetabolic peritoneal nodules, consistent with worsening peritoneal disease.
Surgery is canceled as it’s no longer a realistic option.
Dr. Rossi and I talked last night about the possibility of pursuing chemotherapy and/or a different endocrine hormone option.
I am seeking a second opinion from Dr. Tyler Hillman at UCSD, but I do not have any intentions at this time of transferring my care from Duke.
Thank you to those who reached out by text yesterday with encouraging words, not expecting a response. That was meaningful to me.
I know many will ask how I am feeling. Physically I feel great. I have no real symptoms. Emotionally I am pragmatic and moving into planning mode, though we don’t fully know yet what that will look like.
For this weekend, there are plenty of other things to concentrate on, most importantly Hannah’s baby shower which is tomorrow. She and Ethan are having a GIRL!
When I was a child, I memorized the entirety of Psalm 27, and this morning verses 13 and 14 are on repeat in my head:
I remain confident of this:
I will see the goodness of the Lord
in the land of the living.
Wait for the Lord;
be strong and take heart
and wait for the Lord.